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Recent standards in diagnosis, treatment and medical care for some rare neuromuscular diseases


The goals of the Conference is to raise awareness about NMDs (SMA, DMD) among Ukrainian health care doctors and research community, obtain support at government level, and educate involved families on latest developments and standards of care.

The conference is supposed to last for 2-3 days. There will be a lot of topics covered, with emphasis on topics about SMA and DMD. We are planning to invite diverse guest speakers to present on standards of care of patients with NMD, as well as provide information about recent clinical trials and a process of establishing worldwide patients database. The last day will be devoted to parents' group discussions.


Support by: 

Official Carrier of the Conference