Профільні партнери події, дослідження і законопроекти

• 
  is an umbrella organisation, founded in 2006, which includes SMA patient and research organisations from across Europe
• 
  is a network, launched in 2007 for the neuromuscular field that provides an infrastructure to ensure that the most promising new therapies reach patients as quickly as possible.
• 
  Rare Diseases Europe is a unique, non-profit alliance of 808 rare disease patient organisations